Category Archives: Addison

Another PICU Stay

Well, the shit show that has been our lives since February continues. Another hospital stay. I’m so tired I can’t even think straight any more. I’m tired of the four walls of this hospital, I’m tired of shitty cafeteria food, … Continue reading

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Another Day, Another Specialist

After Addison’s stay in the PICU in December, we finally got a consult to a pulmonary (lung) doctor. (Hey, it only took four hospital stays in nine months). They got us an appointment for the middle of January. I did … Continue reading

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She’s a Fighter

I have been thinking a lot about Addison and how far she has come this past week. The month of October always makes me think about our little peanut and all she has been through. Two years ago, she was … Continue reading

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Superkids

Yes, I have a special needs child, who is one of three. Yes, my life is hectic and stressful and my to-do lists never seem to end. I have very little “me time.” My needs almost always come last and … Continue reading

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Here We Are Again…

Well, we didn’t get to stay away from the hospital for as long as we were hoping. We thought after Addi got her g-tube, we would get a nice reprieve from spending all our free time at Akron Children’s. But, … Continue reading

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Addison Update (March)

Addison has seen all of her specialists over the past few weeks; it has been a little busy on the appointment front. The good news is, we don’t have to see any of them again for 3 months, so hopefully … Continue reading

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Things I’ve Learned as a Special Needs Parent

I have been contemplating the journey that we were thrown into thanks to having a child with special needs. It is not a journey that I ever thought I would take. It has been a journey of contradictions. It has … Continue reading

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Home Again, Home Again

Quick update: Addison got to come home today. We got to stay in the hospital one more night than planned. That extra night just ensured that she was tolerating her feedings. By the time we were discharged, she had 24 … Continue reading

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Addison got her G-tube!

I’m sure most of you know, or have seen, that Addison finally got to have surgery to get her g-tube. We could not be more excited to be rid of the NG tube! The NG tube was supposed to be … Continue reading

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Update: November 9th-December 8th

I don’t know about you, but it has been a crazy month for us! Mostly little Miss Addison keeping us hopping as usual. We saw her physiatrist on the 4th. We had been questioning whether or not she was having … Continue reading

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