Category Archives: Weekly Update

Update on Addison: Take 2

Here’s a quick summary of what has been going on with Addison over the past week. I am going to attempt to hit the highlights and not get too detailed. She was extubated last Saturday (the 18th). It was a … Continue reading

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Update: June 2016

I have been seriously slacking on the blog posts for the past few months. I am really hoping to get back into posting more regularly. We did have a couple of rough months, so I didn’t have a lot of … Continue reading

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Here We Are Again…

Well, we didn’t get to stay away from the hospital for as long as we were hoping. We thought after Addi got her g-tube, we would get a nice reprieve from spending all our free time at Akron Children’s. But, … Continue reading

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Addison Update (March)

Addison has seen all of her specialists over the past few weeks; it has been a little busy on the appointment front. The good news is, we don’t have to see any of them again for 3 months, so hopefully … Continue reading

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And Suddenly…Toddlers!

It is a strange and amazing thing to watch your kids grow up right before your eyes. Sometimes as parents, you don’t realize it right away. You spend every day with your children, so all the little changes aren’t so … Continue reading

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Home Again, Home Again

Quick update: Addison got to come home today. We got to stay in the hospital one more night than planned. That extra night just ensured that she was tolerating her feedings. By the time we were discharged, she had 24 … Continue reading

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Oriana – 17 Months

Our little sunshine baby has finally started feeding herself. Oriana took her sweet time to start doing so, but she’s got it down. She is walking all over the house. She has always had really good balance and that helped … Continue reading

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Violet – 17 months

I’m fairly certain it was just about forever ago now that I promised individual updates on Violet and Oriana. I’ve taken a bit of a break from blogging; I just didn’t have the energy or motivation. I have recharged my … Continue reading

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Addison got her G-tube!

I’m sure most of you know, or have seen, that Addison finally got to have surgery to get her g-tube. We could not be more excited to be rid of the NG tube! The NG tube was supposed to be … Continue reading

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Update: November 9th-December 8th

I don’t know about you, but it has been a crazy month for us! Mostly little Miss Addison keeping us hopping as usual. We saw her physiatrist on the 4th. We had been questioning whether or not she was having … Continue reading

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